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Boy with rare disease raising money for doctors who helped him

Click to play video: 'Milestone boy living with brittle bone disease fundraising for research'
Milestone boy living with brittle bone disease fundraising for research
Milestone boy living with brittle bone disease fundraising for research – Mar 25, 2016

MILESTONE, Sask. – For nine-year-old Carter Brown, recovery is not enough.

Carter was born with a debilitating disease called Osteogenesis Imperfecta, meaning his body was extremely fragile.

As a baby, Carter’s bones were fractured at the slightest disturbance. Then, Carter’s parents discovered the Shriner’s hospital in Montreal.

READ MORE: Told he wouldn’t walk, Milestone boy overcomes rare condition

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“He was never supposed to walk and now he’s running, jumping, playing with his friends and doing all sorts of things that we never, as parents, imagined he would ever do,” Jennifer Brown said.

The Shriner’s hospital in Montreal took Carter in and using the latest research, were able to strengthen his bones with regular IV injections.

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“I’ve been well and I don’t even feel like I have O.I.” Carter explained.

Now, the energetic boy is on a mission to give back.

The ‘In Dreams, I Walk’ campaign was launched by the Shriner’s hospital and have actively used Carter as their ambassador.

The nine-year-old now travels North America, raising awareness about the disease and fundraising for more research.

Carter’s latest fundraiser has had orders for his bright yellow t-shirts pouring in from across the continent.

All the money going directly to treatment efforts for the brittle bone disease and the doctors who helped carter get back on his feet.

Last year, Carter raised over $60,000 for the new Shriner’s Hospital for Children in Montreal.

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