SASKATOON – Over 240 people have come from across Canada to Saskatoon to learn about the latest research on a rare genetic disorder.
At the Hilton Garden Inn, the Canadian Association of Williams Syndrome (CAWS) 5th-annual family conference concluded on Sunday.
Williams Syndrome affects the development of the brain, the cardiovascular system and facial structure. There is currently no cure as it is caused by a genetic/chromosomal defect.
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Medical professionals are giving a number of detailed presentations over the weekend, educating families on how they can better deal with the disorder.
“We have families that have new babies that have just been diagnosed and so they’re here anticipating, worried, excited to learn; and yet, overwhelmed at the same time. And then we have other families who are veterans and who’ve been at our conferences, or possibly the ones in the U.S., before,” said CAWS President Orvella Small.
An early diagnosis can mean better understanding of the problems which may arise, leading to a better life for the child and relief and support for family members.
CAWS is a registered non-profit society with more than 500 families involved.
Volunteers for specials events and donations are always welcome.
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