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Dynamic duo raises funds for muscular dystrophy

WATCH ABOVE: Ethen Edwards and Blaine Abel have created a CD to raise funds for muscular dystrophy, a disease that Ethen has been battling for many years.

GEORGETOWN – Ethen Edwards loves to sing while his friend Blaine Abel plays the guitar.  Together this dynamic duo has managed to produce a CD for a cause the 12-year-old Ethen knows all too well.

“[Ethen] was diagnosed in 2006 with Duchenne muscular dystrophy. He was three years old,” said Ethen’s mom, Julie Edwards.
“It affects over 50,000 Canadians,” said Kevin Harrison, national director of corporate giving, Muscular Dystrophy Canada. “Muscular dystrophy is a neural muscular disorder that affects your nerves and your muscles. What people don’t realize is that there [are] over 150 different kinds.”

Late last year, the two boys from Silver Creek Public School decided to call themselves the Ford Fairlanes. Through school performances and CD sales, they’ve managed to sell 300 CDs, raising $3,000 to support people affected by muscular dystrophy.

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Edwards said he hopes that his CD sales “can raise enough money to help other people in wheelchairs and people who need wheelchairs.”

To make this wish come true, the boys teamed up with Bart Manierka, an educational assistant. They now practice their music every day after school.

“The very first time I heard Ethen sing, I knew this kid was special,” said Manierka. “When we went to the studio to record, we hardly had to do a double take. Blaine’s playing was perfect. Ethen’s singing was perfect.”

The band is making such an impact that Muscular Dystrophy Canada has agreed to take on this campaign as a project.

“Thanks to fundraisers just like this one, I actually became a father last year,” said Harrison. “Researchers were able to identify the gene that causes my specific neural muscular disorder.  We were able to ensure that my son was born healthy, without the disorder. So in my family, the disease started with me and it’s going to end with me.”

“[Kevin] is an inspiration to me,” said Edwards. “He has muscular dystrophy just like me and I feel really good that I got to meet him.”

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