The face of 16-year-old Jordan Boyd in his hockey uniform stood large in the room at Halifax Infirmary hospital.
His mom and dad, Stephen and Debbie Boyd, were to see his face on the mural for the first time on Thursday, which was created in the hopes it would inspire other families facing inherited heart disease in Atlantic Canada.
“It’s a legacy for Jordan, and anybody who lost a child would understand how much it means to have him remembered,” said Stephen as he tried to fight back tears.
Jordan Boyd lost his life suddenly in August 2013 while attending training camp for the Acadie-Bathurst Titan, when he collapsed on the ice.
His condition wasn’t diagnosed until after his death, when it was determined he had arrhythmogenic right ventricular cardiomyopathy, a rare inherited heart disease.
“I hope this will bring awareness, because you just don’t know,” Debbie said.
“Jordan was 16, he was young, he never had any issues and the first sign was the last sign.”
Over the past six years, the Boyd family has hosted an annual hockey tournament organized in memory of the teen from Bedford, N.S., raising more than $800,000 for research into inherited heart diseases.
The money raised so far has helped improve player safety protocols in Quebec Major Junior Hockey League by making it mandatory that there be three staff members trained in CPR and AED.
In addition, the funding has helped create a full-time research nurse position for the QEII’s Inherited Heart Disease Clinic, which, according to the hospital, “is already uncovering important breakthroughs.”
Gardner said the clinic now uses new tools to detect inherited heart disease disorders.
WATCH: Fifth-annual Jordan Boyd Celebrity Hockey Challenge
“One of the important things is that when we identify somebody in a family we know, we have to see all members of the family and we have new investigations like the MRI and ECG and these need to be used more and more.”
He also noted the importance of having access to automatic external defibrillators.
READ MORE: Jordan Boyd Celebrity Hockey Challenge raises $700,000 for inherited heart disease research
“We see more and more people now saved by AED,” he added.
The mural room at the Halifax Infirmary will serve as a place for people with inherited heart disease, and their families, to be examined.
Stephen Boyd hopes that the people who enter the room would see Jordan and “know he was the kind of guy who was always kind and gracious.”
— with files from The Canadian Press