Local fundraiser hits the target on rare blood disease

EDMONTON – Axehole, Edmonton’s indoor axe throwing facility is doing its part to raise awareness of a rare blood disease. Twenty-five per cent of proceeds from all axe-throwing sessions Sunday were donated to Diamond Blackfan Anemia.

Patients suffering from the rare disorder don’t have any red blood cells and are not able to produce any on their own.

Carrie Kuzik started Hunter’s Fight for a Cure Foundation after her 11-year old son Hunter was diagnosed with the rare disorder when he was just 6 weeks old.

“Were very grateful to them for giving us this opportunity and for not only raising funds for our cause but raising awareness,” said his mother Carrie Kuzik.

Hunter has to get a blood transfusion every three weeks.

“Before a transfusion it’s really hard on him because he gets really tired and he loses a lot of energy as his appetite goes down and you can tell that he needs a transfusion, we call it an energy boost for him,” Kuzik added. “We’ve been doing this for 11 years now so it’s definitely our way of life.”

Tweet This Click to share quote on Twitter: "Before a transfusion it's really hard on him because he gets really tired and he loses a lot of energy as his appetite goes down and you can tell that he needs a transfusion, we call it an energy boost for him," Kuzik added. "We've been doing this for 11 years now so it's definitely our way of life."

The money raised from today’s event will go towards hematology research at the Stollery Children’s Hospital.

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