Spinraza
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Activist Sammy Cavallaro awarded Quebec National Assembly’s Medal of HonourA young West Island activist and advocate for people with disabilities was awarded the National Assembly’s medal of honour Wednesday.CanadaJul 13, 2022
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Alberta covering expensive SMA treatment for Fairview toddler ‘Mighty Max’An Alberta toddler with a rare disorder will be have a multi-million-dollar treatment covered by the Alberta government.CanadaFeb 23, 2021
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GTA family fundraising to get life-saving drug for twins'It's really hard and it's really painful for us to see them fall down and lose their muscle ... we hope that our twins can get Zolgensma on time.'HealthFeb 20, 2021
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2 Alberta toddlers receive life-saving drug thanks to angel donor and pharmaceutical lotteryTwo Alberta families are celebrating early Christmas miracles this week. Kaysen Martin and Harper Hanki both received IV gene-therapy treatments.CanadaDec 3, 2020
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Alberta family hopes to raise $2.8M to give toddler treatment for spinal muscular atrophyA family is urgently trying to raise $2.8 million to give their son a potentially life-changing drug that could help him with his spinal muscular atrophy.HealthDec 2, 2020
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‘So fortunate’: Alberta baby ‘wins’ drug lottery for $2.8M spinal muscular atrophy treatmentHarper Hanki, who is just over a year old, was diagnosed with spinal muscular atrophy Type 1 (SMA 1) when she was just seven months old.HealthOct 25, 2020
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Spreading hope for Harper: How an Alberta girl’s fight for a medical treatment is bringing people togetherA little girl from Spruce Grove, Alta., is bringing people from across the province together in a fight for a multi-million-dollar lifesaving treatment.HealthSep 26, 2020
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Toronto-area pharmacist with rare disease pleads with Ontario for access to life-saving drug"It will allow me to keep the functions that I have currently and I'm able to maintain my life as I currently have it. That's all I really ask."HealthJul 28, 2020
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‘Devastating’: B.C. parents fighting to raise millions for three-month-old daughter’s treatment"We're so in love and she's the perfect addition to our family. So the news of her diagnosis was really devastating and shocking to us."HealthJul 3, 2020
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Alberta family raising $2.8 million for baby to receive cure for spinal muscular atrophy in U.S."It was deemed the world's most expensive therapy." An Alberta family is hoping their 10-month-old baby will be able to receive a cure for his disease in the U.S.HealthJan 30, 2020
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