Rare Disease Strategy
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‘We need research’: Advocates raise awareness on Rare Disease Day in CanadaFriday marks Rare Disease Day in Canada; however, the day is normally celebrated on the rarest day of the year – Feb. 29, when there is one.HealthFeb 28, 2025
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Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategyThe mother of a Saskatoon boy who had to go to the USA for life-saving treatment fears her efforts to improve rare disease treatment at home will go unheard.CanadaJan 24, 2023
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Saskatoon family to be reimbursed for out-of-country medical feesThe provincial government is reimbursing most of the cost of life-saving brain disease treatment received by Kirsten Finn's now-five-year-old son, Conner, in 2020.CanadaNov 22, 2021
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Saskatoon family wants a rare disease strategy for CanadiansCanada does not have a rare disease strategy to help allow those suffering from uncommon diseases to have greater access to medications and funding for further research.HealthOct 9, 2019
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