Rare Disease Strategy

• Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy

  The mother of a Saskatoon boy who had to go to the USA for life-saving treatment fears her efforts to improve rare disease treatment at home will go unheard.

  Canada

  Jan 24, 2023
  
• Saskatoon family to be reimbursed for out-of-country medical fees

  The provincial government is reimbursing most of the cost of life-saving brain disease treatment received by Kirsten Finn's now-five-year-old son, Conner, in 2020.

  Canada

  Nov 22, 2021
  
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• Saskatoon family wants a rare disease strategy for Canadians

  Canada does not have a rare disease strategy to help allow those suffering from uncommon diseases to have greater access to medications and funding for further research.

  Health

  Oct 9, 2019