Zolgensma
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Alberta family denied multi-million-dollar gene therapy fundingAn Alberta family has been dealt a devastating blow after being informed that their child does not qualify for funding for a costly gene therapy treatment.HealthApr 2, 2021
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Alberta covering expensive SMA treatment for Fairview toddler ‘Mighty Max’An Alberta toddler with a rare disorder will be have a multi-million-dollar treatment covered by the Alberta government.CanadaFeb 22, 2021
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GTA family fundraising to get life-saving drug for twins'It's really hard and it's really painful for us to see them fall down and lose their muscle ... we hope that our twins can get Zolgensma on time.'HealthFeb 20, 2021
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Alberta to cover treatment for spinal muscular atrophy on case-by-case basisZolgensma, a gene therapy medication, was approved by Health Canada in December, however, the standard drug review and negotiating processes are still not complete.HealthJan 27, 2021
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‘Support and love totally outweighs’ theft from bottle drive: Mighty Max familyMax Sych — or "Mighty Max" — has spinal muscular atrophy Type 2, a rare, progressive disorder that affects about one in 6,000 babies.CanadaJan 8, 2021
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Health Canada approves $2.8M treatment for spinal muscular atrophyThe drug's approval is exciting news for two Alberta families who have been trying to fundraise millions of dollars to access the treatment for SMA.CanadaDec 16, 2020
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2 Alberta toddlers receive life-saving drug thanks to angel donor and pharmaceutical lotteryTwo Alberta families are celebrating early Christmas miracles this week. Kaysen Martin and Harper Hanki both received IV gene-therapy treatments.CanadaDec 3, 2020
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Alberta family hopes to raise $2.8M to give toddler treatment for spinal muscular atrophyA family is urgently trying to raise $2.8 million to give their son a potentially life-changing drug that could help him with his spinal muscular atrophy.HealthDec 2, 2020
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‘So fortunate’: Alberta baby ‘wins’ drug lottery for $2.8M spinal muscular atrophy treatmentHarper Hanki, who is just over a year old, was diagnosed with spinal muscular atrophy Type 1 (SMA 1) when she was just seven months old.HealthOct 25, 2020
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Spreading hope for Harper: How an Alberta girl’s fight for a medical treatment is bringing people togetherA little girl from Spruce Grove, Alta., is bringing people from across the province together in a fight for a multi-million-dollar lifesaving treatment.HealthSep 26, 2020
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