zolgensma
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‘Support and love totally outweighs’ theft from bottle drive: Mighty Max familyMax Sych — or "Mighty Max" — has spinal muscular atrophy Type 2, a rare, progressive disorder that affects about one in 6,000 babies.CanadaJan 8
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Health Canada approves $2.8M treatment for spinal muscular atrophyThe drug's approval is exciting news for two Alberta families who have been trying to fundraise millions of dollars to access the treatment for SMA.CanadaDec 16, 2020
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2 Alberta toddlers receive life-saving drug thanks to angel donor and pharmaceutical lotteryTwo Alberta families are celebrating early Christmas miracles this week. Kaysen Martin and Harper Hanki both received IV gene-therapy treatments.CanadaDec 3, 2020
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Alberta family hopes to raise $2.8M to give toddler treatment for spinal muscular atrophyA family is urgently trying to raise $2.8 million to give their son a potentially life-changing drug that could help him with his spinal muscular atrophy.HealthDec 2, 2020
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‘So fortunate’: Alberta baby ‘wins’ drug lottery for $2.8M spinal muscular atrophy treatmentHarper Hanki, who is just over a year old, was diagnosed with spinal muscular atrophy Type 1 (SMA 1) when she was just seven months old.HealthOct 25, 2020
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Spreading hope for Harper: How an Alberta girl’s fight for a medical treatment is bringing people togetherA little girl from Spruce Grove, Alta., is bringing people from across the province together in a fight for a multi-million-dollar lifesaving treatment.HealthSep 26, 2020
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B.C. baby who needed multi-million dollar drug for SMA1 finally receives doseLucy Van Doormaal received a dose of Zolgensma at B.C. Children’s Hospital on Sept. 9.HealthSep 17, 2020
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B.C. baby randomly selected by drug company to receive life-changing $3 million treatmentThe drug company Novartis/AveXis, which makes the very expensive drug Zolgensma, gifts a treatment to someone about every two weeks.HealthAug 13, 2020
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Fundraising goal reached for B.C. baby who needs $3-million drug to save his lifeOne-year-old Aryan Deol has spinal muscular atrophy (SMA), a condition that causes muscular weakness and atrophy.HealthAug 9, 2020
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B.C. baby who needs $3M-drug to save her life will be receiving treatmentIn a statement, Lucy's parents said they don't have a confirmed date for the treatment yet but it will likely be early September.HealthAug 8, 2020
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