Ehlers-Danlos Syndrome
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Condition that led to Jets prospect’s retirement causes fragility, instability, expert saysThe rare medical condition that has led to the retirement of a Winnipeg Jets prospect at 21 is unfamiliar to the general public, the head of an advocacy organization says.HealthApr 9, 2025
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Coronavirus: Ontario patients, caregivers highlight impact of pandemic on rare disease community"These are people that fall through the cracks and fall through the cracks," said Durhane Wong-Rieger, President and CEO of Canadian Organization for Rare Disorders.CanadaFeb 26, 2021
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Sia reveals she suffers from rare neurological disease, says she’s ‘taking time off’On Friday, the Chandelier singer revealed that she had been recently diagnosed with a rare neurological disease as well as Ehlers–Danlos syndrome.EntertainmentOct 7, 2019
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Opera singer says Ehlers-Danlos syndrome once robbed her of her voiceThe rare condition can cause loose joints, elastic skin or other life-threatening complications.HealthJul 27, 2017
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Ontario announces new clinic for EDS, expands other clinics for rare diseasesThe Ontario government says it is improving access to specialized care for people living with rare diseases.HealthFeb 27, 2017
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Thousands of Albertans seek medical treatment out of country: reportAccording to a new report, more than 52,000 Canadians sought non-emergency medical treatment outside of Canada last year; almost 6,000 of those patients were from Alberta.CanadaMar 17, 2015
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Year in review: Global’s health reporters share stories that resonated mostTo mark the end of 2014, Global News' team of health reporters across the country took a look at the stories that resonated most with them.HealthDec 18, 2014
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Teen with rare medical condition now allowed to attend promKatie Bialy’s mom noted the change came after the principal watched Global New’s initial story.EducationMay 9, 2014
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‘It wasn’t fair’: Why an Ontario school isn’t letting a sick girl go to promProm is considered a rite of passage for many teenagers, but one St. Catharines student has been told she’ll have to stay home.May 2, 2014
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