Atypical Hemolytic-uremic Syndrome

• ‘I can start with my life again’: life-saving drug approved for BC woman with rare disease

  “It’s like you go from planning the end of your life to planning the rest of your life."

  Health

  Nov 22, 2017
  
• Mississauga woman whose life was saved by expensive drug pushes B.C. to cover its costs like Ontario does

  Nadia Saiphoo was planning her funeral before taking Soliris. Within a week, she was able to leave the hospital.

  Health

  Nov 16, 2017
  
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• B.C. health minister faces questions on why government won’t fund life-saving drug for young woman

  As Jennifer Anaquod watches her daughter's health hang in the balance, the B.C. government is looking into whether it should fund a drug that could potentially save Shantee Anaquod's life.

  Nov 14, 2017
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• Student’s battle against rare disease renews calls for better drug coverage in B.C.

  The costly drug Soliris can help treat UBC student Shantee Anaquod's rare condition, but the province currently doesn't cover it.

  Health

  Nov 13, 2017
• It costs $750K per year to treat her rare disease, and B.C. doesn’t cover the cost

  There are concerns that the drug is too expensive and that it has unclear benefits.

  Canada

  Nov 12, 2017
• Ontario approves costly funding for drug to treat rare condition

  Ontario will start providing interim funding for a costly drug used to treated a rare genetic condition.

  Politics

  Feb 25, 2015
• Watch: Abbotsford man diagnosed with rare disease pleads for subsidized drug

  An Abbotsford man is making an emotional appeal to the province tonight to pay for the only drug that can keep him alive.

  Aug 2, 2013