atypical hemolytic-uremic syndrome
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‘I can start with my life again’: life-saving drug approved for BC woman with rare disease“It’s like you go from planning the end of your life to planning the rest of your life."HealthNov 22, 2017
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Mississauga woman whose life was saved by expensive drug pushes B.C. to cover its costs like Ontario doesNadia Saiphoo was planning her funeral before taking Soliris. Within a week, she was able to leave the hospital.HealthNov 16, 2017
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B.C. health minister faces questions on why government won’t fund life-saving drug for young womanAs Jennifer Anaquod watches her daughter's health hang in the balance, the B.C. government is looking into whether it should fund a drug that could potentially save Shantee Anaquod's life.Nov 14, 2017
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Student’s battle against rare disease renews calls for better drug coverage in B.C.The costly drug Soliris can help treat UBC student Shantee Anaquod's rare condition, but the province currently doesn't cover it.HealthNov 13, 2017
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It costs $750K per year to treat her rare disease, and B.C. doesn’t cover the costThere are concerns that the drug is too expensive and that it has unclear benefits.CanadaNov 12, 2017
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Ontario approves costly funding for drug to treat rare conditionOntario will start providing interim funding for a costly drug used to treated a rare genetic condition.PoliticsFeb 25, 2015
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Watch: Abbotsford man diagnosed with rare disease pleads for subsidized drugAn Abbotsford man is making an emotional appeal to the province tonight to pay for the only drug that can keep him alive.Aug 2, 2013
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