Chen Hong-zhi’s notebooks are his life.
Nine years ago, Chen seriously damaged his hippocampus, a part of the brain associated with forming memories, in a traffic accident.
The 26-year-old has lost the ability to make and retain short-term memories. Instead, he painstakingly records his days in lined notebooks, crammed with entries in blue ink.
“I use the notebook to remember who I helped today, how much farm work I did, whether there was rain … the notebook is my memory,” said Chen, who lives with his stepmother, Wang Miao-cyong, 65, in a remote village in Hsinchu County, northwestern Taiwan.
“I once lost one of my notebooks. I was so sad that I was crying and asked my dad to help me find it.”
Since his father died four years ago, Chen and his stepmother have lived on a government disability allowance and a small income they get from farming fruit and vegetables, which they barter with neighbors, some of whom call Chen “notebook boy.”
Dr Lin Ming-teng, head of the psychiatry department at Taipei Veterans General Hospital, said Chen has made remarkable progress despite his extensive brain damage.
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“From the X-ray, we can see a large part of his brain in black – these are the sections that were operated on after the traffic accident,” Lin said.
“After losing such a substantial portion of his brain, it is quite amazing for him to achieve what he is doing now,” Lin said, adding that Chen could only remember things he had done in the last five to 10 minutes.
Lin said the damage had also affected Chen’s ability to receive and process information.
“This has an effect on his relationship with his mother, too, as sometimes his mother cannot get over the fact that he forgets things,” Lin said.
Wang longs to go back to her hometown in Indonesia, but she feels she cannot leave Chen alone.
“If I leave, who will take care of my son? I can’t imagine his future after I die.”
For now, Chen’s notebooks allow him to preserve some semblance of order in his life.
“October 26 go to Beipu alone, Chen clan organization, go find phone, go Catholic church, Citian Temple, 10:38 ZZZ,” reads one poignant note about a day he spent searching for, and praying to find, his lost mobile phone.
Ten days later, he found his phone, documenting the find in his notebook, of course.
(Reporting by Tyrone Siu in Taipei, Writing by Anne Marie Roantree, Editing by Karishma Singh)
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