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Conference on polycystic kidney disease to be held in DDO

WATCH ABOVE: DDO will host a conference on polycystic kidney disease at the Civic Centre theatre. Dr. Asham Alam and PKD Foundation of Canada coordinator Luisa Miniaci-Di Leo dropped by the Global News Morning to tell us more about it – Oct 27, 2016

According to nephrologist Ahsan Alam, a doctor at the Royal Victoria Hospital, polycystic kidney disease (PKD) is the fourth most common cause of kidney failure.

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It is a genetic disorder characterized by the growth of numerous cysts in the kidneys.

Autosomal dominant PKD is the most common inherited form, while autosomal recessive PKD is a rare.

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People born with the disease develop cysts in the kidney, which then spreads to the liver.

“Life is constant urinary tract infections, kidney infections, cyst that rupture, [it’s] constant pain,”  said PKD Foundation of Canada coordinator Luisa Miniaci-Di Leo.

“For me, sitting or lying down is the worst thing for me because [I] have these big masses … it’s hard, so I rely on pain killers three to four times a week.”

There is no existing cure for PKD.

PKD: and its Effect on Other Organs conference will be held Friday, Oct. 28 at the Dollard-des-Ormeaux Civic Centre Theatre.

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