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1:51 Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy

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Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy

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Advocates frustrated a year after Saskatchewan’s pledge to explore rare disease strategy

January 24, 2023

The mother of a Saskatoon boy who had to go to the USA for life-saving treatment fears her efforts to improve rare disease treatment at home will go unheard.

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