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central okanagan
October 21 2021 7:44pm

Kelowna mom on a mission to raise awareness about rare genetic condition to improve access to funding

Tomorrow marks world Phelan-McDermid Syndrome day–if you’ve never heard of it–you’re not alone. It’s not a well-known condition and that’s something a Kelowna mom is trying to change. Because as Klaudia Van Emmerik reports, that’s the reason she says her son was denied government funding for support services–something she doesn’t want any other family to experience.

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