Soliris

• UBC student marks graduation 4 years after potentially fatal diagnosis

  Shantee Anaquod was diagnosed with a rare autoimmune disease in 2017 and became the face of a fight to get provincial coverage for the expensive drug that turned her life around.

  Health

  Jun 2, 2021
  
• ‘You don’t plan for grief of this kind’: father of baby who died of aHUS speaks for first time

  "I miss my son. Four weeks ago was the worst day of my life. Losing him feels like losing a limb."

  Health

  Mar 24, 2018
  
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• SFU student could lose $750K life-saving drug if his kidneys don’t improve

  "They said my kidneys have to become healthier in the three months."

  Health

  Dec 25, 2017
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• She spent over 2 months in hospital, waiting on a $750K drug. Now, she’s gone home for Xmas

  "I just felt like I was going to be able to get out of the hospital eventually."

  Health

  Dec 14, 2017
• B.C. government approves coverage of expensive drug for student with rare disease

  The medicine costs approximately $750,000 a year and can improve a patient’s condition who’s living with aHUS.

  Nov 21, 2017
• B.C. government approves coverage of expensive drug Soliris on case-by-case basis

  The drug became a hot-button issue after 23-year-old Shantee Anaquod went public with her battle to seek coverage.

  Nov 20, 2017
• Mississauga woman whose life was saved by expensive drug pushes B.C. to cover its costs like Ontario does

  Nadia Saiphoo was planning her funeral before taking Soliris. Within a week, she was able to leave the hospital.

  Health

  Nov 16, 2017
• B.C. health minister faces questions on why government won’t fund life-saving drug for young woman

  As Jennifer Anaquod watches her daughter's health hang in the balance, the B.C. government is looking into whether it should fund a drug that could potentially save Shantee Anaquod's life.

  Nov 14, 2017
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• Student’s battle against rare disease renews calls for better drug coverage in B.C.

  The costly drug Soliris can help treat UBC student Shantee Anaquod's rare condition, but the province currently doesn't cover it.

  Health

  Nov 13, 2017
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• It costs $750K per year to treat her rare disease, and B.C. doesn’t cover the cost

  There are concerns that the drug is too expensive and that it has unclear benefits.

  Canada

  Nov 12, 2017