Phelan-McDermid Syndrome

• Kelowna class goes green for Phelan-McDermid Syndrome day

  Parent Sam Michiel handed out green bandanas in her son's class to help raise awareness about rare genetic conditions and to advocate for improved access to funding.

  News

  Oct 21, 2021
  
• Kelowna woman on a mission to raise awareness about son’s rare genetic condition

  PMS is a genetic condition caused by a deletion or change to the structural end of a chromosome.

  Health

  Oct 10, 2021
  
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• Okanagan mom hoping to make rare genetic condition better known

  According to the Phelan McDermid Syndrome Foundation, the condition is so rare that there are only about 2,000 known cases worldwide.

  Health

  Oct 22, 2020
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• B.C. declares Oct. 22 as an awareness day, thanks to Okanagan mom

  Kelowna mom successful in having the province officially proclaim October 22 as Phelan-McDermid Syndrome Awareness Day.

  Canada

  Oct 22, 2019