Giant Axonal Neuropathy

• Alberta boy embraces Curly Hair Day while living with rare disorder

  Fewer than 100 people in the world are diagnosed with giant axonal neuropathy (GAN), two in Alberta. Curly Hair Day is dedicated to raising awareness about the rare disease.

  Health

  May 3, 2024
  
• Alberta girl with ALS-like disorder to receive award for courage

  Eight-year-old Jordan Gagnon has a rare, terminal disorder. Staff of the Glenrose Rehabilitation Hospital will soon honour her with a Courage Award for inspiring others.

  Features

  Sep 4, 2019
  
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• WATCH: Terminally ill Edmonton girl fulfills her dream of learning to dance

  Jordan Gagnon, like many five-year-old girls, has one dream: to learn to dance. And for the little girl's mother, the time to learn is now, because she doesn't know how much time her daughter has left.

  Features

  May 12, 2016