Cystic Fibrosis

• She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say

  When Madi Vanstone was 11, she found a medication that would be life changing for her battle against cystic fibrosis, but it came with a catch.

  Health

  Feb 15
  
• Saskatchewan expands Trikafta coverage for cystic fibrosis

  The Saskatchewan government has announced it is increasing coverage for a drug used to treat cystic fibrosis. Patients and doctors say that's great news.

  Health

  Nov 22, 2024
  
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• N.B. woman set to study abroad told she can only get 28-day supplies of life-saving drug

  A New Brunswick woman with cystic fibrosis has been told she cannot receive an extended supply of life-saving medication as she prepares to study abroad.

  Canada

  Aug 13, 2024
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• Sask. announces treatment coverage expansion for children with cystic fibrosis

  Cystic fibrosis patients in Saskatchewan who are two to five years of age will be eligible for Trikafta as the province announced coverage for those who meet medical criteria.

  Health

  Jan 30, 2024
• Alberta further expands access of revolutionary cystic fibrosis drug Trikafta to young kids

  Trikafta is a breakthrough prescription drug: rather than just treating symptoms of cystic fibrosis, it targets the basic defect from one specific genetic mutation that causes CF.

  Health

  Dec 13, 2023
• Volunteers don superhero costumes for fourth annual Quest4CF

  Saskatoon's Kinsmen club hosted the fourth annual Quest4CF.

  Canada

  Oct 15, 2023
• Halloween treasure hunt held across Saskatoon to fight cystic fibrosis

  The Halloween-themed treasure hunt spanned across Saskatoon after starting at the Black Fox Farm and Distillery.

  Canada

  Oct 16, 2022
• Hoops4Hope returns in-person to raise funds for cystic fibrosis

  The Hoops4Hope event returned this year to its regular format for the first time since 2019. The 3-on-3 basketball event raises awareness for cystic fibrosis.

  Canada

  Oct 10, 2022
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• B.C. expands children’s access to ‘transformational’ cystic fibrosis drug

  Until now, Trikafta has only been covered for patients aged 12 and over, and without coverage the drug costs $25,000 per month. 

  Health

  Sep 7, 2022
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• ‘Frustrating’: Family urges B.C. to fund new drug for young kids with cystic fibrosis

  Oliver Narciso's lung function began declining suddenly last year and he spent two weeks in the hospital this summer undergoing tests, according to his mother, Miriana Narciso. 

  Health

  Aug 31, 2022