Canadian Organization For Rare Disorders

• She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say

  When Madi Vanstone was 11, she found a medication that would be life changing for her battle against cystic fibrosis, but it came with a catch.

  Health

  Feb 15, 2025
  
• Coronavirus: Young Canadians with rare diseases feeling impact of pandemic

  "Why can't we take the same kind of initiative that we've had to COVID to helping our children with rare diseases?" asked CORD CEO Durhane Wong-Rieger.

  Health

  Mar 16, 2021
  
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• Coronavirus: Ontario patients, caregivers highlight impact of pandemic on rare disease community

  "These are people that fall through the cracks and fall through the cracks," said Durhane Wong-Rieger, President and CEO of Canadian Organization for Rare Disorders.

  Canada

  Feb 26, 2021