Rare Disorder
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Kingston town crier holds special proclamation Sunday for children with rare speech disorderKingston's town crier held a special proclamation in honour of Childhood Apraxia Awareness Month. His granddaughter has the speech disorder.HealthMay 9, 2021
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Fighting for Reign: Alberta boy’s family says he needs $2.8M treatment for rare disorderReign Johnston's family met Kaysen Martin's when both babies were in Edmonton's Stollery Children's Hospital. The boys have the same rare disorder and their families say they both need the same expensive treatment.HealthJul 14, 2020
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Alberta girl with ALS-like disorder to receive award for courageEight-year-old Jordan Gagnon has a rare, terminal disorder. Staff of the Glenrose Rehabilitation Hospital will soon honour her with a Courage Award for inspiring others.FeaturesSep 4, 2019
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Hamilton teen with rare aging disorder vows to ‘keep fighting’Devin Scullion has defied the odds more times in his 19 years than most will in an entire lifetime. Doctors said his rare disorder would kill him by age 12. He's turning 20 in two months.CanadaJun 22, 2016
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Utah man has rare disorder that makes him allergic to foodA man from Utah has a rare disorder that makes him allergic to food, causing him to eat hypoallergenic powdered nutrients through a tube into his stomach.WorldAug 25, 2015
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Parents of toddler allergic to food raise awareness about rare conditionFor one young Edmonton-area girl, eating any type of food can be deadly. That's because she suffers from a rare condition called FPIES.HealthNov 5, 2014
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