Zayden Eagle Plume just celebrated his first birthday in the Foothills hospital in Calgary. In fact, the young Cardston boy has not been able to leave since he was born. Eagle Plume has a rare and fatal disease called urea cycle disorder
“What it is we all have ammonia in our body and he can’t exit it, and it sits in his body and it gets him very sick and he can die from it,” explains Bianca Mountain Horse, Zayden’s legal guardian.
According to doctors, most people with urea disorder don’t live more than a few weeks, but little Zayden has defied the odds by becoming the longest living male survivor of the disease.
“ I can’t believe Zayden has hit the one year mark because he should not be here.” said Mountain Horse.
Zayden does not qualify to be on a typical donor list. Instead, he needs a liver transplant from a living donor.
Arnold and Bianca Mountain Horse took on the roll of Zayden’s guardians when he was born, but his biological mother Josee remains a big part of his life and lives at the foothills hospital with her little boy
“I’m kind of getting use to it. I have been doing it for a long time, but I get lonely,” says Eagle Plume.
The Mountain Horses have three children of their own, and Zayden’s medical bills have a put a financial strain on the family.
Friends and family have organized a fundraiser for Zayden this Thursday in Cardston to help alleviate that strain.
“ We are humbled of them for coming out and my biggest shout out is to the town of Cardston, the town’s people have helped us out to the extreme,” adds Arnold Mountain Horse.
“It will be from 6:00 p.m to 8:00 p.m at Cardston High School and we are having and a auction and entertainers and some Pow Wow dancer and door prizes.”
Tickets will be sold at the door for 25 dollars each.
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