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Global News Hour at 6 BC
December 11 2020 8:45pm

B.C. family raising funds for clinical trial for treatment of rare disorder

Makeda Insley is one of just a handful of kids worldwide diagnosed with the deadly neurological disorder Aspartylglucosaminuria (AGU). Her mom and parents of other sufferers are now trying to raise money for a clinical trial of a promising genetic treatment. Catherine Urquhart reports

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