July 3 2020 10:12pm

Vancouver family pleading for help to save their daughter who has a rare neuromuscular disorder

HEALTH MATTERS: A Vancouver family is pleading for help after their baby was diagnosed with a rare a neuromuscular disorder.
At just two weeks old, Lucy, could no longer move her limbs and struggled to breathe. There’s groundbreaking gene therapy but it has only been approved in the United States and it’s extremely costly. As Linda Aylesworth reports, to save Lucy’s life, time is of the essence.

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