Spastic Paraplegia Type 50

• Coronavirus: Toronto-area family of child with rare disease turns to Ottawa for help with funding

  "Every night I can't sleep well ... thinking how are we going to raise another $1.6 million?"

  Canada

  Oct 1, 2020
  
• Toronto family of child with ultra-rare disease urges public to take COVID-19 seriously

  "We have to be extra careful with Michael because he has some underlying conditions, and this could really be a life or death situation for him."

  Health

  Mar 25, 2020
  
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• Toronto family of child with ultra-rare disease fighting for a cure

  "He looks like a normal kid ... loves life. He's an angel. He's my little buddy," said Terry Pirovolakis, the boy's father.

  Health

  Jun 27, 2019