Crucial medical supplies for toddler stolen from Saskatoon home
A family was shocked to find out $5,100 worth of medical supplies, which are needed to treat their toddler’s rare condition, were stolen from their Saskatoon home. Continue reading
Epidermolysis Bullosa
‘Butterfly’ boy who ‘had enough of life’ receives 10,000 birthday cards
Rhys Williams has received more than 10,000 birthday cards since his mom shared his heartbreaking story. Continue reading
Baby born without skin, undergoing treatment that could save his life
Ja’bari’s mom has only been able to hold him twice, but she has to wear a gown and gloves. Continue reading
Saskatoon mother of butterfly baby calling for expanded health coverage
By Ryan Kessler Reporter
Baby Leo has a condition known as epidermolysis bullosa, which causes his skin to blister and tear. Continue reading
‘Butterfly baby’ born to Calgary couple: ‘It breaks my heart’
By Jill Croteau Reporter
Elias is 11 days old and was born with the rare genetic disorder called epidermolysis bullosa. Continue reading
Ontario parents fight school board on accommodation for children with rare skin condition
By Caryn Lieberman Digital Broadcast Journalist
For two years, a Pickering couple has been asking to have air conditioning installed in their children’s classrooms. The kids have a rare skin condition and the family insists air condition would help in warmer times. Continue reading
‘Butterfly boy’ saved from debilitating illness after doctors create new skin
Hassan was unable to walk and eat well with about 60 per cent of his body covered in sores. However, after the successful treatment, he is now back in school and playing outside just like any normal kid. Continue reading
‘Butterfly boy’ Jonathan Pitre overjoyed after success of experimental treatment
He’s not completely out of the woods yet, but for the first time, Ottawa’s Jonathan Pitre may be looking at a future free from severe pain. Continue reading
‘Butterfly boy’ with rare skin condition battling to find a cure
Jonathan Pitre is one of an estimated 5,000 people in Canada with some form of Epidermolysis bullosa — a disease that causes painful, burn-like blisters all over his body. Continue reading
WATCH: Rare skin condition makes baby Kiira untouchable
From the outside, baby Kiira looks like any other baby, but a heartbreaking and painful skin condition doesn’t allow for anyone to touch her. Continue reading