Epidermolysis Bullosa

• N.B. hospital prepares for expectant mom with rare skin condition

  Emily Boros-Rausch is expected to give birth any day, but with only two epidermolysis bullosa clinics in Canada, she's worked with The Moncton Hospital to prepare for her delivery

  Health

  May 14
• New French Catholic school in Ottawa to be named after Jonathan Pitre

  L'École élémentaire catholique Jonathan-Pitre, under construction in Riverside South in Ottawa's south end, is expected to open this fall.

  Canada

  Feb 26, 2020
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• Crucial medical supplies for toddler stolen from Saskatoon home

  A family was shocked to find out $5,100 worth of medical supplies, which are needed to treat their toddler's rare condition, were stolen from their Saskatoon home.

  Crime

  Nov 20, 2019
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• ‘Butterfly’ boy who ‘had enough of life’ receives 10,000 birthday cards

  Rhys Williams has received more than 10,000 birthday cards since his mom shared his heartbreaking story.

  Trending

  Sep 16, 2019
• Baby born without skin, undergoing treatment that could save his life

  Ja'bari's mom has only been able to hold him twice, but she has to wear a gown and gloves.

  Lifestyle

  Apr 17, 2019
• Saskatoon mother of butterfly baby calling for expanded health coverage

  Baby Leo has a condition known as epidermolysis bullosa, which causes his skin to blister and tear.

  Canada

  Jul 19, 2018
• ‘Butterfly baby’ born to Calgary couple: ‘It breaks my heart’

  Elias is 11 days old and was born with the rare genetic disorder called epidermolysis bullosa.

  Health

  Jun 14, 2018
• Ontario parents fight school board on accommodation for children with rare skin condition

  For two years, a Pickering couple has been asking to have air conditioning installed in their children's classrooms. The kids have a rare skin condition and the family insists air condition would help in warmer times.

  Education

  Jan 17, 2018
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• ‘Butterfly boy’ saved from debilitating illness after doctors create new skin

  Hassan was unable to walk and eat well with about 60 per cent of his body covered in sores. However, after the successful treatment, he is now back in school and playing outside just like any normal kid.

  Health

  Nov 10, 2017
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• ‘Butterfly boy’ Jonathan Pitre overjoyed after success of experimental treatment

  He's not completely out of the woods yet, but for the first time, Ottawa's Jonathan Pitre may be looking at a future free from severe pain.

  Canada

  May 17, 2017