Epidermolysis Bullosa
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N.B. hospital prepares for expectant mom with rare skin conditionEmily Boros-Rausch is expected to give birth any day, but with only two epidermolysis bullosa clinics in Canada, she's worked with The Moncton Hospital to prepare for her deliveryHealthMay 14, 2021
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New French Catholic school in Ottawa to be named after Jonathan PitreL'École élémentaire catholique Jonathan-Pitre, under construction in Riverside South in Ottawa's south end, is expected to open this fall.CanadaFeb 26, 2020
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Crucial medical supplies for toddler stolen from Saskatoon homeA family was shocked to find out $5,100 worth of medical supplies, which are needed to treat their toddler's rare condition, were stolen from their Saskatoon home.CrimeNov 20, 2019
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‘Butterfly’ boy who ‘had enough of life’ receives 10,000 birthday cardsRhys Williams has received more than 10,000 birthday cards since his mom shared his heartbreaking story.TrendingSep 16, 2019
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Baby born without skin, undergoing treatment that could save his lifeJa'bari's mom has only been able to hold him twice, but she has to wear a gown and gloves.LifestyleApr 17, 2019
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Saskatoon mother of butterfly baby calling for expanded health coverageBaby Leo has a condition known as epidermolysis bullosa, which causes his skin to blister and tear.CanadaJul 19, 2018
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‘Butterfly baby’ born to Calgary couple: ‘It breaks my heart’Elias is 11 days old and was born with the rare genetic disorder called epidermolysis bullosa.HealthJun 14, 2018
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Ontario parents fight school board on accommodation for children with rare skin conditionFor two years, a Pickering couple has been asking to have air conditioning installed in their children's classrooms. The kids have a rare skin condition and the family insists air condition would help in warmer times.EducationJan 17, 2018
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‘Butterfly boy’ saved from debilitating illness after doctors create new skinHassan was unable to walk and eat well with about 60 per cent of his body covered in sores. However, after the successful treatment, he is now back in school and playing outside just like any normal kid.HealthNov 10, 2017
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‘Butterfly boy’ Jonathan Pitre overjoyed after success of experimental treatmentHe's not completely out of the woods yet, but for the first time, Ottawa's Jonathan Pitre may be looking at a future free from severe pain.CanadaMay 17, 2017
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