This is a special “Extra Dosage” bonus episode of When Life Gives You Parkinson’s. Full episodes will be released every other Wednesday. In between, co-host Niki Reitmeyer and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
From the time my hand started to tremor to the time of my Parkinson’s diagnosis, I’d seen my family physician three times. I’d been poked, pushed, pulled and tested by two neurologists and some residents, had blood tests, an ultrasound, an MRI, lost many hours in doctor office waiting rooms and chewed my fingernails to the quick — a couple of times. It was eight months of not knowing. And I was lucky. Some people are waiting years.
It is not as if putting a label on my strange symptoms made it better or even go away, but for me, it is just a relief to know it is something. But why is Parkinson’s disease so hard to diagnose?
In this Extra Dosage episode of When Life Gives You Parkinson’s, I talk to my neurologist and pepper him with questions that I’ve never asked him before. Why is it hard to diagnose? What would he do if he was diagnosed? Is there really a gut health connection? What should I ask in my check-ups? What’s he looking for? And more. I find Dr. Jonathon Squires frank, funny, authentic, and accessible. I hope you do, too.
Meanwhile, Niki sits down with Sandie Jones and Grace Ferrari at Parkinson Canada. Sandy pre-dates the Parkinson wonder drug Levodopa. She shares her experience with Parkinson’s as a nurse in the early 1960s. After hearing what it was like, I’ll likely never complain about having to take my pills so often.
Follow me, Larry Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Follow Co-host and Producer Niki Reitmeyer
Twitter: @Niki_Reitmayer
I see Dr. Jonathon Squires at the Djavad Mowafaghian Centre for Brain Health at UBC.
You can find more information about the centre here https://www.centreforbrainhealth.ca/
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For more info on our partner Parkinson Canada head to http://www.parkinson.ca/
The toll-free hotline mentioned in this episode is 1-800-565-3000
Or follow them on Twitter
Parkinson Canada @ParkinsonCanada
Parkinson Society BC @ParkinsonsBC
Credits
Dila Velazquez – Story Producer
Rob Johnston – Senior Audio Producer
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