In the backyard of their home in Horseshoe Valley, north of Barrie, Ont., smiling three-year-old Josef Gortnar is proudly pushing his big sister on the swings. She is one of around 15 Canadians with CL2 Batten Disease, an inherited nervous system disorder – one her brother Josef also shares. No specific treatment is available to cure it, but treatments exist to manage the symptoms. It’s been a long, difficult journey for the family since the children were diagnosed, and the COVID-19 pandemic has not helped.
Canada
Coronavirus: Young Canadians with rare diseases feeling impact of pandemic
More Videos
-
Cancelled carbon capture project casts doubt on Canada’s climate plan
-
Is the government of India behind a global campaign against Sikh separatism?
-
Is there a connection between India and a notorious gang?
-
Hardeep Singh Nijjar: Arrests in case raise Canadian national security concerns
-
Canada’s women hockey players battle for ultimate Walter Cup prize
-
University protests: McGill, Uof T pro-Palestinian protesters vow to stay until divestment demands met
You are viewing an Accelerated Mobile Webpage.
View Original Article