Cure SMA Canada
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Cyclist pedals across Canada to raise funds, awareness about genetic diseaseOne man is cycling across Canada to raise awareness around access to treatment for Spinal Muscular Atrophy, a genetic disease that affect's a person's ability to move.CanadaJul 9, 2023
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Life-changing drug Spinraza still not covered for many Canadians with spinal muscular atrophyThe drug, which has been proven to stop the progression of spinal muscular atrophy, costs hundreds of thousands of dollars a year.HealthJul 4, 2019
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