Brineura
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B.C. ending rare drug coverage means girl will ‘suffer horrifically,’ family saysCharleigh Pollock, 9, is being treated for a terminal neurological disorder known as Batten disease with twice-monthly infusions of a drug that costs about $1 million per year.HealthFeb 11, 2025
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‘A deck of cards no one should be dealt’: Ontario siblings fight rare disease, hope for cure"I'll never forget it. (On) January 15th, we go down for our usual meet-and-greet and discussions at SickKids and they give us the devastating news."HealthNov 1, 2019
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Province to cover costs of life-saving treatment for Vancouver Island 3-year-oldCharleigh Pollack has been in desperate need of the $1 million-per-year therapy to treat a rare disease.HealthJun 14, 2019
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Province working on approving life-saving medication for Vancouver Island 3-year-oldA desperate Vancouver Island family is asking the province to approve a drug that could save their daughter's life.HealthJun 14, 2019
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