aHUS

• ‘You don’t plan for grief of this kind’: father of baby who died of aHUS speaks for first time

  "I miss my son. Four weeks ago was the worst day of my life. Losing him feels like losing a limb."

  Health

  Mar 24, 2018
• ‘I can start with my life again’: life-saving drug approved for BC woman with rare disease

  “It’s like you go from planning the end of your life to planning the rest of your life."

  Health

  Nov 22, 2017
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• B.C. government approves coverage of expensive drug for student with rare disease

  The medicine costs approximately $750,000 a year and can improve a patient’s condition who’s living with aHUS.

  Nov 21, 2017
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• B.C. government approves coverage of expensive drug Soliris on case-by-case basis

  The drug became a hot-button issue after 23-year-old Shantee Anaquod went public with her battle to seek coverage.

  Nov 20, 2017
• Six-week-old baby believed to be youngest person with aHUS

  "It's been kind of moment by moment."

  Health

  Nov 16, 2017
• Mississauga woman whose life was saved by expensive drug pushes B.C. to cover its costs like Ontario does

  Nadia Saiphoo was planning her funeral before taking Soliris. Within a week, she was able to leave the hospital.

  Health

  Nov 16, 2017
• B.C. health minister faces questions on why government won’t fund life-saving drug for young woman

  As Jennifer Anaquod watches her daughter's health hang in the balance, the B.C. government is looking into whether it should fund a drug that could potentially save Shantee Anaquod's life.

  Nov 14, 2017
• Student’s battle against rare disease renews calls for better drug coverage in B.C.

  The costly drug Soliris can help treat UBC student Shantee Anaquod's rare condition, but the province currently doesn't cover it.

  Health

  Nov 13, 2017
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• It costs $750K per year to treat her rare disease, and B.C. doesn’t cover the cost

  There are concerns that the drug is too expensive and that it has unclear benefits.

  Canada

  Nov 12, 2017
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• Patient groups must say if their funding comes from pharma companies

  Patient advocacy groups which get some part of their funding from pharmaceutical companies do have to disclose that information before lobbying the government.

  Health

  Nov 25, 2014