aHUS
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UBC student marks graduation 4 years after potentially fatal diagnosisShantee Anaquod was diagnosed with a rare autoimmune disease in 2017 and became the face of a fight to get provincial coverage for the expensive drug that turned her life around.HealthJun 2, 2021
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‘You don’t plan for grief of this kind’: father of baby who died of aHUS speaks for first time"I miss my son. Four weeks ago was the worst day of my life. Losing him feels like losing a limb."HealthMar 24, 2018
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‘I can start with my life again’: life-saving drug approved for BC woman with rare disease“It’s like you go from planning the end of your life to planning the rest of your life."HealthNov 22, 2017
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B.C. government approves coverage of expensive drug for student with rare diseaseThe medicine costs approximately $750,000 a year and can improve a patient’s condition who’s living with aHUS.Nov 21, 2017
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B.C. government approves coverage of expensive drug Soliris on case-by-case basisThe drug became a hot-button issue after 23-year-old Shantee Anaquod went public with her battle to seek coverage.Nov 20, 2017
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Six-week-old baby believed to be youngest person with aHUS"It's been kind of moment by moment."HealthNov 16, 2017
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Mississauga woman whose life was saved by expensive drug pushes B.C. to cover its costs like Ontario doesNadia Saiphoo was planning her funeral before taking Soliris. Within a week, she was able to leave the hospital.HealthNov 16, 2017
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B.C. health minister faces questions on why government won’t fund life-saving drug for young womanAs Jennifer Anaquod watches her daughter's health hang in the balance, the B.C. government is looking into whether it should fund a drug that could potentially save Shantee Anaquod's life.Nov 14, 2017
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Student’s battle against rare disease renews calls for better drug coverage in B.C.The costly drug Soliris can help treat UBC student Shantee Anaquod's rare condition, but the province currently doesn't cover it.HealthNov 13, 2017
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It costs $750K per year to treat her rare disease, and B.C. doesn’t cover the costThere are concerns that the drug is too expensive and that it has unclear benefits.CanadaNov 12, 2017
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