Kelowna teen finds way to raise awareness and money for research of a rare disease that she has been diagnosed with

It is a disease that is very rare–affecting only about 5 people per million each year. One of them is a Kelowna teen. She was diagnosed with it just over two years ago and now she is using her and her family’s passion for cycling to help raise much needed awareness and funds in the hopes of one day finding a cure. Klaudia Van Emmerik reports.

• Okanagan teen using passion for cycling to raise awareness about rare disease she lives with