Ophira Calof of Toronto has been living with Ehlers-Danlos syndrome (EDS) for years. Her rare condition causes severe chronic pain which makes it difficult sometimes to walk or talk. Becoming a voice of her own cause, Calof launched her own campaign, along with a music video called “Still Standing” to educate others on EDS.
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‘Still Standing’ aims to educate others on Ehlers-Danlos syndrome
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