Spastic Paraplegia Type 50
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Coronavirus: Toronto-area family of child with rare disease turns to Ottawa for help with funding"Every night I can't sleep well ... thinking how are we going to raise another $1.6 million?"CanadaOct 1, 2020
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Toronto family of child with ultra-rare disease urges public to take COVID-19 seriously"We have to be extra careful with Michael because he has some underlying conditions, and this could really be a life or death situation for him."HealthMar 25, 2020
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Toronto family of child with ultra-rare disease fighting for a cure"He looks like a normal kid ... loves life. He's an angel. He's my little buddy," said Terry Pirovolakis, the boy's father.HealthJun 27, 2019
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