SMA1

• Health Canada approves $2.8M treatment for spinal muscular atrophy

  The drug's approval is exciting news for two Alberta families who have been trying to fundraise millions of dollars to access the treatment for SMA.

  Canada

  Dec 16, 2020
  
• B.C. family who raised millions for their child’s rare drug pays it forward

  "I see they're doing this for lots of families, this is amazing, they're changing lives," Cherie Ehlert told Global News.

  Health

  Oct 29, 2020
  
• Advertisement
• B.C. baby who needed multi-million dollar drug for SMA1 finally receives dose

  Lucy Van Doormaal received a dose of Zolgensma at B.C. Children’s Hospital on Sept. 9.

  Health

  Sep 17, 2020
• Advertisement
• B.C. baby randomly selected by drug company to receive life-changing $3 million treatment

  The drug company Novartis/AveXis, which makes the very expensive drug Zolgensma, gifts a treatment to someone about every two weeks. 

  Health

  Aug 13, 2020
• Fundraising goal reached for B.C. baby who needs $3-million drug to save his life

  One-year-old Aryan Deol has spinal muscular atrophy (SMA), a condition that causes muscular weakness and atrophy.

  Health

  Aug 9, 2020
• B.C. baby who needs $3M-drug to save her life will be receiving treatment

  In a statement, Lucy's parents said they don't have a confirmed date for the treatment yet but it will likely be early September.

  Health

  Aug 8, 2020
• ‘Devastating’: B.C. parents fighting to raise millions for three-month-old daughter’s treatment

  "We're so in love and she's the perfect addition to our family. So the news of her diagnosis was really devastating and shocking to us."

  Health

  Jul 3, 2020