rare diseases
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Patients, health organizations band together to bring breakthrough treatments to Canada soonerMore than a dozen health organizations and patient groups across Canada have united to call on governments to increase access to life-changing drugs.HealthOct 21, 2020
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Family of boy with rare neurological disorder pleading with Ontario government to release funding"To families, especially right now during COVID, it will allow them access to pay for things where they can be included with their peers."HealthJul 29, 2020
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Kaysen Martin’s family frustrated as they await decision on $2.8M drug coverageThe mother of two-year-old Kaysen Martin says it's unrealistic for her family to raise the $2.8 million needed for her son's drug coverage.HealthJul 24, 2020
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Hollywood’s Ryan Reynolds joins fight for Edmonton toddler needing $2.8M life-saving drugAn Edmonton toddler with just days to raise millions for a life-saving drug just got a boost from Canadian actor Ryan Reynolds.HealthJul 6, 2020
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His life-threatening genetic disease went undiagnosed for 30 years — then his newborn got itIan Stedman was only the 11th confirmed case of Muckle-Wells syndrome in Canada.LifestyleFeb 29, 2020
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Edmonton boy battles rare disease that makes him ‘itch like crazy’It started with a terrible itch, then the toddler turned yellow.HealthDec 27, 2019
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Alberta runner Dave Proctor looking to shatter trans-Canada speed record in 2020Ultramarathoner Dave Proctor is penetrating again to run 7,200 kilometres across the country in 65 days, to raise money and awareness for rare diseases that are difficult to diagnose and treat.HealthSep 15, 2019
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B.C. government to fund expensive treatments for hearts failure and liver diseaseThe B.C. government has approved the coverage of expensive drugs that will help British Columbians living with heart failure, liver disease or pulmonary arterial hypertension.HealthNov 27, 2018
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Moose Jaw woman fighting to access life-saving treatmentAfter raising nearly $250,000 for potentially life-saving medical treatment, the hard part was supposed to be over.HealthAug 3, 2018
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Hospital Mom Hacks: Saskatchewan mom’s YouTube channel helps parents of sick kidsFor the last three years, Kyla Thomson's daughter has spent over 600 nights at the Alberta Children's Hospital and Thomson has learned how to parent a child with complex medical needs.HealthMar 24, 2017
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