More than a dozen health organizations and patient groups across Canada have united to call on governments to increase access to life-changing drugs.

"To families, especially right now during COVID, it will allow them access to pay for things where they can be included with their peers."

The mother of two-year-old Kaysen Martin says it's unrealistic for her family to raise the $2.8 million needed for her son's drug coverage.

An Edmonton toddler with just days to raise millions for a life-saving drug just got a boost from Canadian actor Ryan Reynolds.

Ian Stedman was only the 11th confirmed case of Muckle-Wells syndrome in Canada.

It started with a terrible itch, then the toddler turned yellow.

Ultramarathoner Dave Proctor is penetrating again to run 7,200 kilometres across the country in 65 days, to raise money and awareness for rare diseases that are difficult to diagnose and treat.

The B.C. government has approved the coverage of expensive drugs that will help British Columbians living with heart failure, liver disease or pulmonary arterial hypertension.

After raising nearly $250,000 for potentially life-saving medical treatment, the hard part was supposed to be over.

For the last three years, Kyla Thomson's daughter has spent over 600 nights at the Alberta Children's Hospital and Thomson has learned how to parent a child with complex medical needs.