rare diseases
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Saskatoon family to be reimbursed for out-of-country medical feesThe provincial government is reimbursing most of the cost of life-saving brain disease treatment received by Kristin Finn's now-five-year-old son, Conner, in 2020.CanadaNov 22, 2021
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Saskatchewan family renews calls for reimbursement of $832K out-of-country medical billThe health minister said Monday he's willing to meet with the family to review their case, adding he isn't ruling out reimbursement.CanadaNov 15, 2021
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Coronavirus: Ontario patients, caregivers highlight impact of pandemic on rare disease community"These are people that fall through the cracks and fall through the cracks," said Durhane Wong-Rieger, President and CEO of Canadian Organization for Rare Disorders.CanadaFeb 26, 2021
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Patients, health organizations band together to bring breakthrough treatments to Canada soonerMore than a dozen health organizations and patient groups across Canada have united to call on governments to increase access to life-changing drugs.HealthOct 21, 2020
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Family of boy with rare neurological disorder pleading with Ontario government to release funding"To families, especially right now during COVID, it will allow them access to pay for things where they can be included with their peers."HealthJul 29, 2020
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Kaysen Martin’s family frustrated as they await decision on $2.8M drug coverageThe mother of two-year-old Kaysen Martin says it's unrealistic for her family to raise the $2.8 million needed for her son's drug coverage.HealthJul 24, 2020
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Hollywood’s Ryan Reynolds joins fight for Edmonton toddler needing $2.8M life-saving drugAn Edmonton toddler with just days to raise millions for a life-saving drug just got a boost from Canadian actor Ryan Reynolds.HealthJul 6, 2020
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His life-threatening genetic disease went undiagnosed for 30 years — then his newborn got itIan Stedman was only the 11th confirmed case of Muckle-Wells syndrome in Canada.LifestyleFeb 29, 2020
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Edmonton boy battles rare disease that makes him ‘itch like crazy’It started with a terrible itch, then the toddler turned yellow.HealthDec 27, 2019
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Alberta runner Dave Proctor looking to shatter trans-Canada speed record in 2020Ultramarathoner Dave Proctor is penetrating again to run 7,200 kilometres across the country in 65 days, to raise money and awareness for rare diseases that are difficult to diagnose and treat.HealthSep 15, 2019
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