Orphan Drugs
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New UBC journalism project aims to raise awareness about rare diseasesThe University of British Columbia is trying to highlight the fact Canada falls behind many other developed countries in helping people with rare diseases.Mar 1, 2016
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Orphan Drugs: The obstacles facing familiesKuvan is funded in Saskatchewan; however, the Creightons have been told their kids don't meet the criteria. They need to somehow prove the drug is working, difficult to do since they've all been treated since birth.CanadaOct 31, 2014
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Orphan Drugs: The politics of prescription fundingEsbriet is approved by Health Canada and is publicly funded in Ontario and New Brunswick, but not Saskatchewan. Harold Tendler has been paying out of pocket for the past year.CanadaOct 30, 2014
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Orphan Drugs: The high cost of rare diseasesExpensive drugs for rare diseases are becoming more common as genetic breakthroughs are leading to an increase in therapies.CanadaOct 29, 2014
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