Spinal Muscular Atrophy Treatment
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B.C. government funds new drug for people with spinal muscular atrophyThe annual cost of the medication — called risdiplam or Evrysdi — is between $93,456 and $354,000 depending on the age and weight of the patient.HealthFeb 15, 2022
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‘So fortunate’: Alberta baby ‘wins’ drug lottery for $2.8M spinal muscular atrophy treatmentHarper Hanki, who is just over a year old, was diagnosed with spinal muscular atrophy Type 1 (SMA 1) when she was just seven months old.HealthOct 25, 2020
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Ontario woman with rare disease forced to pay hundreds of thousands to cover ‘miracle drug’The road has been long and it's been exhausting for Tori Lacey, who suffers from Spinal Muscular Atrophy (SMA) Type 2, but finally the miracle is here in the form of a drug called Spinraza.CanadaApr 3, 2019
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Drug could save hundreds of kids from profound disability – if they can pay for itA game changing drug could save hundreds of Canadian kids with spinal muscular atrophy (SMA) from a life of profound disability, but only if their families can afford to pay hundreds of thousands of dollars a year.HealthAug 11, 2017
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